Wednesday, November 28

breath & light























































All is breath and light here.

Mom's rhythmic breathing is mostly what we've left of her, and it surrounds and fills us. And as I lay in the outdoor tub this morning, the water piping hot enveloping me and the blue sky arching over....I felt the cool breath of the November breezes lift my hair and thought of how Mom will soon be free, free as the wind. Then I watched it toss the branches of the old elm that watches over Mom's little peaked-roofed room...it mostly filled her with wonder and gratitude over the years, tho' its Winter-revealed branches and scarred limbs inspired sadder and more difficult feelings in Mom.

We are hoping she will go as gently as the golden elm leaves that I watch drifting down to the ground in the sunlight, and be spared another Winter...

May the blessing of Light be with you...light without and light within
 ...a favorite blessing of mine, and very much what this day feels like. We are bathed in the light of the sun that is shining in our many windows and warmed by the light of all the love and thoughtfulness pouring down upon us through your comments and prayers coming through these glass pages...

xo



Monday, November 26

sunday evening into monday evening















































Another peaceful day is gifted to us, after a night of some fever and worry. All is hushed...the Satie switched out for Schumann...much as I have found myself switching out things today, like the jar of straws and glasses that will not be sipped from on the bedside table for a long-lost photo of my mom's family when they first arrived in Hawaii, everyone heaped with leis and Mom barefoot...
 
I didn't know before, how similar this feels to preparing the way for new life. We cannot read, we cannot spend much time in contemplation...but washing and folding and putting away fill the hours not spent soothing her brow or rubbing balm into her lips and hands or simply sitting nearby in the consoling light. 

There is little left to clean or put out of sight as I write this, but there are always more candles to make and light, more glasses of wine and water to pour, more tender messages to send and receive, more loving words to whisper in my mother's ear...
 
 
"All shall be well, and all shall be well and all manner of thing shall be well."
 
-Julian of Norwich 
 

xo

Sunday, November 25

weeks, days, hours

*this was written many days ago and newer posts have been made since...you may find them to the left in the sidebar...*


 Just three weeks ago, we were steeping ourselves in the gorgeous Autumn, the days full of their usual beauty and hardship...




 ...encouraging Mom to eat while we sat in the sun in her pretty sitting room...




...finding new thrift store outfits to work with her always declining abilities...


...getting Mom out in the earthy world she loved during the generous portion of warm days we were given,  and all the while feeling all the usual frustration and gratitude and limitation and sweetness. Tho' we had begun to take new sorts of steps...being accepted into Hospice (for the late-stage Alz., not end-of-life), filling out paperwork for handicapped parking as Mom's walking was getting more difficult for her, as was to be expected. But life was going on its usual way.




Just two weeks ago, Mom fell down in her cosy room, as she did her usual puttering around after a nap. There was nothing to trip her, she was simply walking from her closet with her new pair of shoes, when I heard the dreadful thump from the kitchen.

So began a week that is a blur of pain and confusion for Mom, worry and sorrow for the rest of us,  emergency room and hip surgery, days camping out in her hospital room, so many prognoses and questions and finally being able to go home Thursday afternoon, some ten days ago.




Just a week ago, Mom was tucked up in bed, eating her own supper, watching her favorite movies...kept somewhat comfortable and comforted with medicines and her own things about her. I was taking moments out to stock up on all of the things we might need for the long weeks of nursing ahead. It was daunting, but we were stepping out on that journey, and gathering our provisions for it...




 ...making a big batch of tapioca pudding, just as my mom would do when I was a child, filling new shelves with ample bedding and all of the strange supplies that came with the home health agency and hospice help, arranging the room for all that would now take place within its walls, and all the while reassuring, comforting, loving this dear woman...





Then just five days ago, Mom stopped eating...and drinking...and her anxiety and distress grew much larger than they had been. There was no more consolation to be found in our preparations, and very little we could find for Mom except in stronger medications...




 And just two days ago, things shifted again and a peace came down...to my mom, to her room, in our home, in our hearts. She is sleeping, off the medications, breathing easily for now, accepting our ministrations with little fear or pain.





 Yesterday and today, the house has been blessedly free of all those good people who are helping us through this....just Douglas and me...lighting candles, making playlists of Mom's favorite music to play in her room when we tend her, communicating with all who have loved her over the years, making candles as we run low, eating the tapioca pudding for breakfast with our toast, creating an Erik Satie station on Pandora to listen to as we do the laundry and wash the dishes, and glance out the window for quick views of the beautiful, leaf-speckled, bare-limbed, blackbird-dotted world outside.




 We are happy to stay inside mostly....feeling the sacredness of this time. So grateful that our long-held wish that Mom be here at home at the end of her life seems to be granted to us...that she is out of suffering, for always, we hope....that we are here to love her and remember how she loved us...that she is still under our wing.



I am typing this as I sit on the sofa in her bedroom and sun sinks and throws its glow through her western windows...she is sleeping peacefully, her hand on the little white dog that I brought with us to the hospital...there are flowers and a pitcher of rosemary nearby and the painting of her own wondrous mother overlooking her bed. All is calm. May it remain so.

I will keep you posted as we move through what we believe to be the last days and hours.

xo